Their Mission: to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care.
The HealthWell Foundation provides financial assistance to eligible individuals to cover coinsurance, copayments, health care premiums and deductibles for certain medications and therapies. This link goes to their page that deals specifically with Cystic Fibrosis.
Make-A-Wish® grants the wish of a child diagnosed with a life-threatening medical condition in the United States and its territories, on average, every 38 minutes. This link takes you to the “Refer a Child” page where an online request can be submitted.
Their Mission: The mission of UHCCF is to provide medical grants that significantly enhance the clinical condition or quality of life of children across the United States, covered under a commercial health insurance plan and are 16 years old or younger.
Their Mission: To make the lives of those battling Cystic Fibrosis more manageable. We are here to provide medical financial assistance to CF patients and their families in the Rochester area. We strive to improve the quality of life and to inspire others to show their support for the individuals and their families who struggle with this debilitating disease.
Their Mission: CFFC is dedicated to supporting CF patients and families in their daily struggle with cystic fibrosis.
Cystic Fibrosis Family Connection (CFFC) is a charitable, not-for-profit corporation established to assist cystic fibrosis patients and their families. CFFC was founded as an umbrella for a variety of activities to help CF patients and their families cope with the challenges of this disease.
The Patient Advocacy team is committed to the Vertex mission of creating transformative medicines for people with serious diseases. We seek to identify opportunities where we can partner with and learn from people living with serious diseases, like cystic fibrosis (CF), and represent the community voice within Vertex.
Cystic fibrosis (CF) is different for everyone, but every person with CF experiences progression. It’s smart to stay proactive and learn about CF.
CF Source has helpful information about CF for those with CF and CF Caregivers.
CysticFibrosis.com supports the largest and oldest global Cystic Fibrosis community on the web, founded in 1996, comprising patients, caregivers, healthcare professionals and industry service providers. We believe in harnessing the knowledge of the patient and caregiver community to achieve participatory healthcare. Our CF community holds a wealth of knowledge on the disease, challenges they face and possible solutions they envision.